tag:blogger.com,1999:blog-8995326396841325838.post8806287972440131567..comments2023-08-29T10:28:36.132-04:00Comments on The A-Word: Too much to ask?!??Anonymoushttp://www.blogger.com/profile/13792420884570981804noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8995326396841325838.post-32462826908178225852011-09-21T12:27:59.256-04:002011-09-21T12:27:59.256-04:00Trust in the Trinity, girl. God'll see you thr...Trust in the Trinity, girl. God'll see you through. Set a special time and place where you can go to pray if only for TEN minutes. God'll respect that. God'll love that! That'll be your time. And know I'm praying for you everyday, miss gorgeous. I love you. Puh-leeze allow me to kiss your adorable feets in Heaven Above before we go to my BIG-ol, kick-ass, party-hardy for eons celebrating our resurrection. God bless you profusely, doll, for having the bawls. A lot more than two --- See Ecclesiaticus 3:30/Acts 2:21 +levels-o-illusion.blogspot.com+ -blessed holy sockshttp://wiseabove.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-8995326396841325838.post-57110286992744970252011-09-21T07:02:24.575-04:002011-09-21T07:02:24.575-04:00Thanks for listening and letting me know "you...Thanks for listening and letting me know "you get it"- seriously the best thing about having this blog is just knowing I'm NOT alone! I hope things get better for you and Katie too...it drives me insane that hte kids that need the most help are the ones swept under the rug....it shouldn't be that way. Common sense.Heatherhttp://livingwithautism-brian.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-8995326396841325838.post-40049115318041346552011-09-21T07:01:12.842-04:002011-09-21T07:01:12.842-04:00I feel like I should write a long response to this...I feel like I should write a long response to this but for now I'm just going to say "Thank you". Still waiting on a damn response from both the school and the district. Still talking to disability rights. Still seeing what options are. It sucks.Heatherhttp://livingwithautism-brian.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-8995326396841325838.post-90228091132947653692011-09-20T13:29:34.570-04:002011-09-20T13:29:34.570-04:00I know its very sad. You should see some of the st...I know its very sad. You should see some of the stuff that happens in the inner city schools of NY. :(tanianoreply@blogger.comtag:blogger.com,1999:blog-8995326396841325838.post-31244022102354130232011-09-19T10:46:05.930-04:002011-09-19T10:46:05.930-04:00Hoo boy. September is a rough time for our familie...Hoo boy. September is a rough time for our families, isn't it? See my beautiful, shining hair in my little photo? It is a wig. It is a wig because about two years ago when we first started dealing with the public school system and their IFSP/IEP/FAPE bullshit, my hair started falling out. Yeah, baby - stress-induced Alopecia. Everyone told me that I should relax and calm down. WELL, YOU CAN'T RELAX AND CALM DOWN WHEN YOU HAVE SPECIAL NEEDS KIDS. And, public schools for other than typical kids SUCK. I can't tell you how many meetings I left crying. All these people who say things like, "Early intervention is critical to children with special needs" clearly have no desire to actually HELP kids obtain said early intervention. The clawing, fighting, begging and pleading for someone, anyone to help your baby is not worth it. Because, in our opinion, it is all about the Benjamins and NEVER about the Teds, AJs, Brians or Corbins. I've never had success with any of the three public school systems we dealt with. My kid is not yet five and I already feel the life being sucked out of me. I wish you luck, patience, strength and success. ((hugs)) Kelly Haferhttp://profiles.google.com/kellyhafer007noreply@blogger.comtag:blogger.com,1999:blog-8995326396841325838.post-28477094640788439522011-09-19T10:13:52.854-04:002011-09-19T10:13:52.854-04:00I am trying to be very Zen about this crap, b/c la...I am trying to be very Zen about this crap, b/c last year I was a mess, practically went all shining on my house, and gained 20lbs from stress eating. Not that the Zen part is working, but I am trying to tell myself it doesn't matter what the school does b/c we have good private therapists. But, the fact of the matter is, my kid spends her whole day in school and it bothers me how much it sucks, so I get it. K doesn't have a 1:1. I have thought about fighting for one, but all a 1:1 is here, is some random person hired to babysit. Someone with a HS diploma. Not someone trained in ABA or Autism or special ed, period. So, instead I got put in her IEP that the classroom aide, who is trained in ABA and Autism, spend X amount of time with her/day, and do the direct teaching and what not. K will run from class, but not from the school, so elopement is thankfully not an issue for us. I don't need a babysitter, I need someone to actually do ABA shit with her....although, I don't even know for sure how much that works out, either. Dealing with the school sucks. I mean, I cannot imagine anything worse. We are never treated like part of the team, and no matter what legal things are in place, they always screw it up, or make excuses, etc. Then WE have to go broke fighting them. I have no real advice, b/c we deal with the same crap here...I don't even know what to do anymore...Jen Troesterhttp://www.livinglifewithasideofautism.com/noreply@blogger.com